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25 August 2022 | Story Leonie Bolleurs | Photo Supplied
Bernedette Muthien
Bernedette Muthien is the author of Rethinking Africa, which critically opens new pathways for decolonial scholarship and the reclamation of indigenous self-definition by women scholars.

“Claim your own agency and power, no matter how challenging the circumstances. Violence and oppression stop with each of us. We ended apartheid. We will end patriarchy. And everyone will benefit from the end of gender and intersecting oppressions, to live their full potential in an equal and nonviolent society. We are making the change; it is coming; always have hope.”

This is the message to women from Bernedette Muthien, Research Fellow in the Office for International Affairs at the University of the Free State (UFS).

For the past 20 years, she has conducted research on intersectional justice, a topic that is both scholarly, accessible to activists and others, and can be used to improve our communities, our country, and the world at large.

Muthien has written more than 200 publications, some translated into European and local languages, on gender, gender violence, HIV, Aids, poverty, and sexualities.

Additionally, she has published widely in peace and security studies, as well as indigenous studies. Some of her other works deal with human rights and justice, specifically the constitution and education in South Africa. "As a scholar and human being and being involved in the last cohort of youth activists against apartheid during the turbulent 1980s, I consider intersectional justice and constitutional rights of critical importance,” she says.

Restoring dignity to our people

One of Muthien’s most recent works, Rethinking Africa, is a collection of chapters by diverse indigenous women – from playwright Sylvia Vollenhoven, to academic Babalwa Magoqwana – reinterpreting our past from various women’s perspectives.

The book, conceived at the start of the pandemic lockdown and produced in less than a year, critically opens new pathways for decolonial scholarship and the reclamation of indigenous self-definition by women scholars. “It is long overdue that, as indigenous women, we write our own herstory, define our own contemporary cultural and socio-economic conditions, and conceive future visions based on our lived realities, which are social and gender equality, matricentric, beyond-heteronormative, based on nonviolence or peace, ecologically responsible, and goddess-loving,” she says. 

It is Muthien's commitment to her women ancestors and contemporary communities that inspired this work, correcting misinterpretations of indigenous knowledge, women's role in society, and colonially influenced patriarchy in our urban areas.

She believes one needs women at the centre of societies, co-creating social values and practices that are humane and nonviolent, that nurture and foster individual and collective growth, that heal and care, that do no harm, and definitely do not exploit. 

“There is enough light in the cosmos for all the stars to shine. One star’s light does not diminish the glitter of other stars, and shining together, all the stars united can be brighter than even the sun. Together, we continue to define our own herstories and scholarship for ourselves, as indigenous peoples in Africa,” Muthien was heard saying at the online launch of Rethinking Africa last year. 

Through this publication, she mostly wanted to convey that women are central to indigenous societies, and that our environment is alive and worthy of respect. In Muthien's view, humans, animals, plants, and the planet should not be exploited in any way but imbued with dignity.

Furthermore, she believes that we need to reclaim these core indigenous values and practices that have been corrupted by colonially inspired patriarchy. “As a result, we will eradicate gender violence and restore dignity to our women, our men, and to our people," she says.

Challenging colonially inspired patriarchy

The intent of Rethinking Africa is to contribute to scholarship. Yet the contributors are from different sectors, writing in diverse styles, making this work accessible to all audiences. “Photographs of sacred sites and rock art, as well as poems by leading indigenous poets, are included in the book, illustrating the indigenous intersections between scholarship, art, creativity, spirituality, and between individual and community,” she explains. 

The work specifically challenges colonially inspired patriarchy, including religious teachings about patriarchy, about the subordination of women, which contradict indigenous wisdoms of equality and women at society’s centre.

Muthien’s work, although challenging for some, does add value, changing people’s lives for the better. For decades, she has worked on consciousness transformation through scholarship and community work. She is of the opinion that mindsets need to change in order to change behaviour and society. “In this way, the change is deep and lasting,” she says. 

She is also a firm believer in less talk, and more strategic and effective action. “In taking action, one first decolonises the mindset; strip it bare of all internalised oppression. Then it is important to re-instil ancient indigenous knowledge, values, and practices. Also offer skills, networks, resources, to communities as they offer their knowledge to scholars.”

“In addition, leave concrete assets for communities,” she says. Muthien tells the story of a family in Andriesvale, deep in the Kalahari, who built their Kalahari Kombuis, which serves as their residence and a tourist entertainment and dining venue, funded by a small group of Dutch feminists who wanted to contribute to reparations. According to her, the building and the family and community thrive to this day.

And importantly, it is key to have compassion. “Always compassion,” she says.

Muthien offered Rethinking Africa as her contribution to the various communities she has served over decades since birth.

• The book is available in bookshops and online, and online around the world.

News Archive

Higher than expected prevalence of dementia in South African urban black population
2010-09-22

 Prof. Malan Heyns and Mr Rikus van der Poel

Pilot research done by University of the Free State (UFS) indicates that the prevalence of dementia, of which Alzheimer’s disease is only one of the causes, is considerably higher than initially estimated. Clinical tests are now underway to confirm these preliminary findings.

To date it has been incorrectly assumed that dementia is less prevalent among urban black communities. This assumption is strongly disputed by the findings of the current study, which indicates a preliminary prevalence rate of approximately 6% for adults aged 65 years and older in this population group. Previous estimates for Southern Africa have been set at around 2,1%.

The research by the Unit for Professional Training and Services in the Behavioural Sciences (UNIBS) at the UFS and Alzheimer’s South Africa is part of the International 10/66 Dementia Research Group’s (10/66 DRG) initiative to establish the prevalence of dementia worldwide.

Mr Rikus van der Poel, coordinator of the local study, and Prof. Malan Heyns, Principal Investigator, say worldwide 66% of people with dementia live in low and middle income countries. It is expected that it will rise to more than 70% by 2040, and the socio-economic impact of dementia will increase accordingly within this period. 21 September marks World Alzheimer’s Day, and this year the focus is on the global economic impact of dementia. Currently, the world wide cost of dementia exceeds 1% of the total global GDP. If the global cost associated with dementia care was a company, it would be larger than Exxon-Mobil or Wal-Mart.

The researchers also say that of great concern is the fact that South Africa’s public healthcare system is essentially geared toward addressing primary healthcare needs, such as HIV/Aids and tuberculosis. The adult prevalence rate of HIV was 18,1% in 2007. According to UNAIDS figures more than 5,7 million people in South Africa are living with HIV/Aids, with an estimated annual mortality of 300 000. In many instances the deceased are young parents, with the result that the burden of childcare falls back on the elderly, and in many cases elderly grandparents suffering from dementia are left without children to take care of them. “These are but a few reasons that highlight the need for advocacy and awareness regarding dementia and care giving in a growing and increasingly urbanized population,” they say.

Low and middle income countries often lack epidemiological data to provide representative estimates of the regional prevalence of dementia. In general, epidemiological studies are challenging and expensive, especially in multi-cultural environments where the application of research protocols relies heavily on accurate language translations and successfully negotiated community access. Despite these challenges, the local researchers are keen to support advocacy and have joined the international effort to establish the prevalence of dementia through the 10/66 DRG.

The 10/66 DRG is a collective of researchers carrying out population-based research into dementia, non-communicable diseases and ageing in low and middle income countries. 10/66 refers to the two-thirds (66%) of people with dementia living in low and middle income countries, and the 10% or less of population-based research that has been carried out in those regions.

Since its inception in 1998, the 10/66 DRG has conducted population based surveys in 14 catchment areas in ten low and middle income countries, with a specific focus on the prevalence and impact of dementia. South Africa is one of seven LAMICs (low and medium income countries) where new studies have been conducted recently, the others being Puerto Rico, Peru, Mexico, Argentina, China and India.

Mr Van der Poel says participating researchers endeavour to conduct cross-sectional, comprehensive, one-phase surveys of all residents aged 65 and older within a geographically defined area. All centres share the same core minimum dataset with cross-culturally validated assessments (dementia diagnosis and subtypes, mental disorders, physical health, anthropometry, demographics, extensive non-communicable risk factor questionnaires, disability/functioning, health service utilization and caregiver strain).

The local pilot study, funded by Alzheimer’s South Africa, was rolled out through an existing community partnership, the Mangaung University of the Free State Community Partnership Programme (MUCPP).

According to Mr Van der Poel and Prof. Heyns, valuable insights have been gained into the myriad factors at play in establishing an epidemiological research project. The local community has responded positively and the pilot phase in and of itself has managed to promote awareness of the condition. The study has also managed to identify traditional and culture-specific views of dementia and dementia care. In addition, existing community-based networks are being strengthened, since part of the protocol will include the training and development of family caregivers within the local community in Mangaung.

“Like most developing economies, the South African population will experience continued urbanization during the next two decades, along with increased life expectancy. Community-based and residential care facilities for dementia are few and far between and government spending will in all probability continue to address the high demands associated with primary healthcare needs. These are only some of the reasons why epidemiological and related research is an important tool for assisting lobbyists, advocates and policymakers in promoting better care for those affected by dementia.”

Media Release
Issued by: Mangaliso Radebe
Assistant Director: Media Liaison
Tel: 051 401 2828
Cell: 078 460 3320
E-mail: radebemt@ufs.ac.za  
21 September 2010

 

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