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16 September 2024 | Story André Damons | Photo Supplied
Dr Mampoi Jonas and Prof Jan Du Plessis
Dr Mampoi Jonas, senior lecturer in Paediatric Oncology and Prof Jan Du Plessis, Head of the Paediatric Oncology Unit at the University of the Free State (UFS).

A campaign like Childhood Cancer Awareness Month is vital in creating awareness and educating people about the early signs and symptoms of certain cancers. This can significantly improve the survival rate of young patients. More than 50% of people diagnosed with cancer live for more than five years, and some types of cancer have survival rates as high as 90%.

This is according to Prof Jan Du Plessis, Head of the Paediatric Oncology Unit, and Dr Mampoi Jonas, senior lecturer in Paediatric Oncology, at the University of the Free State (UFS).

“Early diagnosis is crucial because early-stage cancer is more responsive to treatment and less likely to be fatal. Due to the rarity of childhood cancer, many children get misdiagnosed or diagnosed too late with advanced stage disease. The delayed detection and diagnosis diminish the chances of successful treatment.

“Cancer awareness educates families, communities, primary-care nurses and doctors about the early signs and symptoms of certain cancers. When people are aware of these, they are more likely to be on the lookout for them when children present with suspicious clinical symptoms and signs. This also gives parents the confidence to seek help early and even make people better able to support those with the disease once a diagnosis is made,” say the paediatric oncologists.

Recorded incidences on the rise

Though childhood cancer is rare, representing only 1.2% of all cancers worldwide, the recorded incidences are increasing. In the US cancer is the number one cause of death among children, while more than 100 000 children worldwide die because of cancer.

Prof Du Plessis says there are more than 12 major types of childhood cancers and multiple subtypes. The most common types are leukaemia, lymphoma (tumours that begin in the lymph glands), brain tumours, nephroblastoma (cancer of the kidneys) and soft tissue sarcomas. Most cancers in children are thought to develop as a result of mutations in genes that lead to uncontrolled cell growth and eventually cancer.

According to Dr Jonas, most cancers in children are thought to develop because of mutations in genes that lead to uncontrolled cell growth and eventually cancer. Although environmental pollutants have been implicated in some cancers, our experience has been that most paediatric cancers rather occur sporadically.

The reasons for the increase of reported incidence of cancer in children, could be to the increase in population numbers and better awareness of childhood cancers. Another reason might be that more children are being diagnosed who were previously misdiagnosed, explains Prof Du Plessis.

Treatments

Childhood cancers are treated with chemotherapy, surgery and radiation therapy under the care of a paediatric oncologist. Not much can be done about the genetic mutations, but parents can ensure that their children stay safe in the sun (slip, slop, slap campaign – slip on a shirt, slop on some suncream and slap on a hat), get their children vaccinated against HPV infection, help their children stay active and keep a healthy weight and talk to them about smoking.

Prof Du Plessis says the South African paediatric oncology community are currently busy with a few research studies regarding standardising treatment protocols for certain childhood cancers. This is to find out how our children are responding to these protocols and to see if there are different factors affecting the outcomes of South African children. These protocols are based on international treatment protocols with a few adjustments for local circumstances and resources.

They are involved with the Hodgkins lymphoma, neuroblastoma, retinoblastoma, germ cell tumour studies and contributed to a research study evaluating the nutritional status and interventions to improve the nutritional status of local patients. Registrars presented local (Bloemfontein) data at an international conference (SIOP Africa) on hepatoblastomas and osteosarcomas.

“For many childhood cancer may not be a priority or something they would like to think about. Unfortunately for many of my patient’s parents the truth is that the day before their children were diagnosed with cancer, they were also not a cancer parent. However, their lives changed for ever with these four words: ‘Your child has cancer’.

“Childhood cancer is more than chemo and no hair. It is rather about resilience, strength, hope, family, courage, cuddles, and bravery. Your life will be changed for ever if you have ever seen a child fight cancer. Their smiles will make your heart melt and make you realise the importance of the simple things in life,” declare Prof Du Plessis and Dr Jonas.

Early warning signs for parents

The Childhood Cancer Foundation South Africa (CHOC) has a campaign which emphasises the importance of recognising the early warning signs of childhood cancer. They use Siluan’s Early Warning Signs to raise awareness and promote early diagnosis which are:

• S – Seek medical help early for ongoing symptoms
• I – White spot in the eye, new squint, sudden blindness or bulging eyeball.
• L – Lump on the stomach, pelvis, head, arms, legs, testicle, or glands
• U – Unexplained fever present for over two weeks, weight loss, fatigue, pale appearance, easy bruising, and bleeding
• A – Aching bones, joints, back, and easy fractures

• N – Neurological signs, a change in walk, balance or speech, regression, continuous headaches with/without vomiting, and an enlarged head

While these symptoms can be subtle or easily attributed to other causes, it’s important to consult a doctor if they persist or worsen. If you notice any of these symptoms in a child or teen, seek professional medical help promptly. Early detection of cancer saves lives in both children and teens.

News Archive

Right to Learn cyclists cross the finish line
2017-12-05

 Description: R2L Finish  Tags: cyclists, Right to Learn, Cape Town, Paarl, GivenGain Foundation, donations 

The Right to Learn cycling team are happy and thankful that they have completed
their journey.
Photo: Mike Rose

After a seven-day journey, the Right to Learn cycling team have finally reached their destination. Having travelled for over a 1 000 kilometres from Bloemfontein, they arrived safely in the Paarl on Monday 4 December 2017. During their final stretch, they travelled 130 kilometres from Montagu to Paarl, where they ended the Right to Learn Cycling Tour.
 
Gratitude for support
Asive Dlanjwa, Bloemfontein Campus SRC President, says, “It's been good, it's been tough, and it’s been an amazing journey.” He expressed his gratitude to everyone who has been supporting them throughout the journey. “Thank you so much for every cent that you have given, for every prayer, and every thought.”
 
Thulasizwe Mxenge, one of the guest cyclists from Johannesburg, says, “Asive had informed us that most students struggle with access to higher education, and we saw the need to assist and take part in the initiative.” He says the journey was tough, because they had to cycle for about five hours every time they went on the road. “I’m very tired but also happy to have completed the journey.”

Donations received
Since the beginning of the Right to Learn initiative, they have managed to raise R80 000 through corporate giving, R15 584 on Dlanjwa’s GivenGain page, and $500 (about R6 845) from the GivenGain Foundation as part of the #GivingTuesday Twitter campaign which took place on 28 November 2017.
 
Annamia van den Heever, Director: Institutional Advancement, says, “Congratulations to Asive and the team!  It has been an absolute pleasure to work with such positive and passionate young people.” She also thanked all donors to the Right to Learn campaign for their support, saying it will ensure that talented students who cannot afford university fees will have access to the UFS next year. “We are hoping that more people will donate now that the tour has been successfully completed. There is no better Christmas gift,” she says.

Dlanjwa says, “We are committed to helping learners who are coming to the UFS next year. The trip was amazing and I feel stronger than I expected. I’d definitely do this again.”
The community is still encouraged to donate towards the initiative, using the following details:

EFT transaction:
Please use the following bank details:
Bank: ABSA Bank
Account Number: 1570850721
Branch Code: 632005
Account Type: Cheque
Reference: R2L: Right to Learn
Send the proof of payment to Rinda Duraan: duraanmj@ufs.ac.za

Debit order: Download the form and email it to Rinda Duraan

All donations are tax deductible in terms of South African income tax legislation.  

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