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16 September 2024 | Story André Damons | Photo Supplied
Dr Mampoi Jonas and Prof Jan Du Plessis
Dr Mampoi Jonas, senior lecturer in Paediatric Oncology and Prof Jan Du Plessis, Head of the Paediatric Oncology Unit at the University of the Free State (UFS).

A campaign like Childhood Cancer Awareness Month is vital in creating awareness and educating people about the early signs and symptoms of certain cancers. This can significantly improve the survival rate of young patients. More than 50% of people diagnosed with cancer live for more than five years, and some types of cancer have survival rates as high as 90%.

This is according to Prof Jan Du Plessis, Head of the Paediatric Oncology Unit, and Dr Mampoi Jonas, senior lecturer in Paediatric Oncology, at the University of the Free State (UFS).

“Early diagnosis is crucial because early-stage cancer is more responsive to treatment and less likely to be fatal. Due to the rarity of childhood cancer, many children get misdiagnosed or diagnosed too late with advanced stage disease. The delayed detection and diagnosis diminish the chances of successful treatment.

“Cancer awareness educates families, communities, primary-care nurses and doctors about the early signs and symptoms of certain cancers. When people are aware of these, they are more likely to be on the lookout for them when children present with suspicious clinical symptoms and signs. This also gives parents the confidence to seek help early and even make people better able to support those with the disease once a diagnosis is made,” say the paediatric oncologists.

Recorded incidences on the rise

Though childhood cancer is rare, representing only 1.2% of all cancers worldwide, the recorded incidences are increasing. In the US cancer is the number one cause of death among children, while more than 100 000 children worldwide die because of cancer.

Prof Du Plessis says there are more than 12 major types of childhood cancers and multiple subtypes. The most common types are leukaemia, lymphoma (tumours that begin in the lymph glands), brain tumours, nephroblastoma (cancer of the kidneys) and soft tissue sarcomas. Most cancers in children are thought to develop as a result of mutations in genes that lead to uncontrolled cell growth and eventually cancer.

According to Dr Jonas, most cancers in children are thought to develop because of mutations in genes that lead to uncontrolled cell growth and eventually cancer. Although environmental pollutants have been implicated in some cancers, our experience has been that most paediatric cancers rather occur sporadically.

The reasons for the increase of reported incidence of cancer in children, could be to the increase in population numbers and better awareness of childhood cancers. Another reason might be that more children are being diagnosed who were previously misdiagnosed, explains Prof Du Plessis.

Treatments

Childhood cancers are treated with chemotherapy, surgery and radiation therapy under the care of a paediatric oncologist. Not much can be done about the genetic mutations, but parents can ensure that their children stay safe in the sun (slip, slop, slap campaign – slip on a shirt, slop on some suncream and slap on a hat), get their children vaccinated against HPV infection, help their children stay active and keep a healthy weight and talk to them about smoking.

Prof Du Plessis says the South African paediatric oncology community are currently busy with a few research studies regarding standardising treatment protocols for certain childhood cancers. This is to find out how our children are responding to these protocols and to see if there are different factors affecting the outcomes of South African children. These protocols are based on international treatment protocols with a few adjustments for local circumstances and resources.

They are involved with the Hodgkins lymphoma, neuroblastoma, retinoblastoma, germ cell tumour studies and contributed to a research study evaluating the nutritional status and interventions to improve the nutritional status of local patients. Registrars presented local (Bloemfontein) data at an international conference (SIOP Africa) on hepatoblastomas and osteosarcomas.

“For many childhood cancer may not be a priority or something they would like to think about. Unfortunately for many of my patient’s parents the truth is that the day before their children were diagnosed with cancer, they were also not a cancer parent. However, their lives changed for ever with these four words: ‘Your child has cancer’.

“Childhood cancer is more than chemo and no hair. It is rather about resilience, strength, hope, family, courage, cuddles, and bravery. Your life will be changed for ever if you have ever seen a child fight cancer. Their smiles will make your heart melt and make you realise the importance of the simple things in life,” declare Prof Du Plessis and Dr Jonas.

Early warning signs for parents

The Childhood Cancer Foundation South Africa (CHOC) has a campaign which emphasises the importance of recognising the early warning signs of childhood cancer. They use Siluan’s Early Warning Signs to raise awareness and promote early diagnosis which are:

• S – Seek medical help early for ongoing symptoms
• I – White spot in the eye, new squint, sudden blindness or bulging eyeball.
• L – Lump on the stomach, pelvis, head, arms, legs, testicle, or glands
• U – Unexplained fever present for over two weeks, weight loss, fatigue, pale appearance, easy bruising, and bleeding
• A – Aching bones, joints, back, and easy fractures

• N – Neurological signs, a change in walk, balance or speech, regression, continuous headaches with/without vomiting, and an enlarged head

While these symptoms can be subtle or easily attributed to other causes, it’s important to consult a doctor if they persist or worsen. If you notice any of these symptoms in a child or teen, seek professional medical help promptly. Early detection of cancer saves lives in both children and teens.

News Archive

UFS Rose Ball promises to be an unforgettable experience
2005-09-08

On Saturday 15 of October 2005, the Department of Paediatrics and Child Health at the University of the Free State (UFS) in collaboration with Medi-Clinic, are hosting a Rose Ball in aid of children and babies with serious diseases and special needs.

The Bloemfontein public should get ready for one of the most magnificent events ever held in the city. 

The Rose Ball promises to offer an evening of glamour, elegance and beauty which will make it an unforgettable and unique event.  The Department aims to make the Rose Ball an annual event to which the Bloemfontein public can look forward to with expectation.

“Excellent food and wine, a 35 man symphony orchestra and of course a magical setting awaits those who attend the Rose Ball.  We will do everything possible to make guests feel special, so that they return to the Rose Ball year after year.  In this way, we can ensure an annual income from this event for children and babies who are very ill and need specialised care,” said Prof. André Venter, Head of the Department of Paediatrics and Child Health.

The Department of Paediatrics and Child Health at the UFS is responsible for the tertiary care, that is highly specialised care, of around 1 000 000 children in the Free State, Northern Cape, North-West, Eastern Cape and Lesotho.  Approximately 13 000 out-patients are treated at the Universitas and Pelonomi Hospitals annually.  Children who suffer from cancer, heart disease, neurological disease and endocrinological and gastro-enterological conditions are treated.  The Department is also responsible for children who need intensive care and children with contagious diseases.  In addition, there is a large neonatal unit where prematurely born babies are treated.

The level of health care needed to treat these children and babies, necessitate highly specialised equipment and knowledge.  However, it is not always possible to replace or upgrade equipment, due to the lack of much-needed funds.  That is why a fund was created within the Department to satisfy the need for funds. The Rose Ball promises to eventually give a vital boost to the fund that will go a long way toward providing in the special healthcare needs of these patients.

The Rose Ball is made possible thanks to the support of Medi-Clinic.

“Medi-Clinic is honoured to be involved in this great effort and in this way take hands with the Department of Paediatrics and Child Health at the UFS.  There are so many children with life-threatening diseases today and we cannot afford to be uninvolved in any effort to make life better and easier for these children.  We at Medi-Clinic, as a private sector company, look forward to establishing a long-term commitment with the Department of Paediatrics and Child Health,” said Mr Sakkie van der Merwe, Hospital Manager of Bloemfontein Medi-Clinic.

Only a limited number of tables are still available for the Rose Ball.  Tickets cost R500 per person or R5 000 per table of 10 people. 

Those who are interested can contact Ms Ilse Olivier at 051-4012415 or Ms Adele van Aswegen at 051-4013535 for more information.

Media release
Issued by:  Lacea Loader
   Media Representative
   Tel:  (051) 401-2584
   Cell:  083 645 2454
   E-mail:  loaderl.stg@mail.uovs.ac.za
8 September 2005
 

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