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16 September 2024 | Story André Damons | Photo Supplied
Dr Mampoi Jonas and Prof Jan Du Plessis
Dr Mampoi Jonas, senior lecturer in Paediatric Oncology and Prof Jan Du Plessis, Head of the Paediatric Oncology Unit at the University of the Free State (UFS).

A campaign like Childhood Cancer Awareness Month is vital in creating awareness and educating people about the early signs and symptoms of certain cancers. This can significantly improve the survival rate of young patients. More than 50% of people diagnosed with cancer live for more than five years, and some types of cancer have survival rates as high as 90%.

This is according to Prof Jan Du Plessis, Head of the Paediatric Oncology Unit, and Dr Mampoi Jonas, senior lecturer in Paediatric Oncology, at the University of the Free State (UFS).

“Early diagnosis is crucial because early-stage cancer is more responsive to treatment and less likely to be fatal. Due to the rarity of childhood cancer, many children get misdiagnosed or diagnosed too late with advanced stage disease. The delayed detection and diagnosis diminish the chances of successful treatment.

“Cancer awareness educates families, communities, primary-care nurses and doctors about the early signs and symptoms of certain cancers. When people are aware of these, they are more likely to be on the lookout for them when children present with suspicious clinical symptoms and signs. This also gives parents the confidence to seek help early and even make people better able to support those with the disease once a diagnosis is made,” say the paediatric oncologists.

Recorded incidences on the rise

Though childhood cancer is rare, representing only 1.2% of all cancers worldwide, the recorded incidences are increasing. In the US cancer is the number one cause of death among children, while more than 100 000 children worldwide die because of cancer.

Prof Du Plessis says there are more than 12 major types of childhood cancers and multiple subtypes. The most common types are leukaemia, lymphoma (tumours that begin in the lymph glands), brain tumours, nephroblastoma (cancer of the kidneys) and soft tissue sarcomas. Most cancers in children are thought to develop as a result of mutations in genes that lead to uncontrolled cell growth and eventually cancer.

According to Dr Jonas, most cancers in children are thought to develop because of mutations in genes that lead to uncontrolled cell growth and eventually cancer. Although environmental pollutants have been implicated in some cancers, our experience has been that most paediatric cancers rather occur sporadically.

The reasons for the increase of reported incidence of cancer in children, could be to the increase in population numbers and better awareness of childhood cancers. Another reason might be that more children are being diagnosed who were previously misdiagnosed, explains Prof Du Plessis.

Treatments

Childhood cancers are treated with chemotherapy, surgery and radiation therapy under the care of a paediatric oncologist. Not much can be done about the genetic mutations, but parents can ensure that their children stay safe in the sun (slip, slop, slap campaign – slip on a shirt, slop on some suncream and slap on a hat), get their children vaccinated against HPV infection, help their children stay active and keep a healthy weight and talk to them about smoking.

Prof Du Plessis says the South African paediatric oncology community are currently busy with a few research studies regarding standardising treatment protocols for certain childhood cancers. This is to find out how our children are responding to these protocols and to see if there are different factors affecting the outcomes of South African children. These protocols are based on international treatment protocols with a few adjustments for local circumstances and resources.

They are involved with the Hodgkins lymphoma, neuroblastoma, retinoblastoma, germ cell tumour studies and contributed to a research study evaluating the nutritional status and interventions to improve the nutritional status of local patients. Registrars presented local (Bloemfontein) data at an international conference (SIOP Africa) on hepatoblastomas and osteosarcomas.

“For many childhood cancer may not be a priority or something they would like to think about. Unfortunately for many of my patient’s parents the truth is that the day before their children were diagnosed with cancer, they were also not a cancer parent. However, their lives changed for ever with these four words: ‘Your child has cancer’.

“Childhood cancer is more than chemo and no hair. It is rather about resilience, strength, hope, family, courage, cuddles, and bravery. Your life will be changed for ever if you have ever seen a child fight cancer. Their smiles will make your heart melt and make you realise the importance of the simple things in life,” declare Prof Du Plessis and Dr Jonas.

Early warning signs for parents

The Childhood Cancer Foundation South Africa (CHOC) has a campaign which emphasises the importance of recognising the early warning signs of childhood cancer. They use Siluan’s Early Warning Signs to raise awareness and promote early diagnosis which are:

• S – Seek medical help early for ongoing symptoms
• I – White spot in the eye, new squint, sudden blindness or bulging eyeball.
• L – Lump on the stomach, pelvis, head, arms, legs, testicle, or glands
• U – Unexplained fever present for over two weeks, weight loss, fatigue, pale appearance, easy bruising, and bleeding
• A – Aching bones, joints, back, and easy fractures

• N – Neurological signs, a change in walk, balance or speech, regression, continuous headaches with/without vomiting, and an enlarged head

While these symptoms can be subtle or easily attributed to other causes, it’s important to consult a doctor if they persist or worsen. If you notice any of these symptoms in a child or teen, seek professional medical help promptly. Early detection of cancer saves lives in both children and teens.

News Archive

Relief for baby and child care at the UFS with donation from Fuchs Foundation
2007-11-17

 

At the launch of the Beds of Hope campaign were, from the left: Dr Riaan Els, Chief Executive Officer of the Carl en Emily Fuchs Foundation, Prof. André Venter (Head of the Department of Paediatrics and Child Care), Ms Corné Booyens (National Grants Manager at the Carl en Emily Fuchs Foundation), Dr Nick van Zyl (Clinical Head at Universitas Hospital), and Prof. Niel Viljoen (Chief Director: Operations).
Photo: Leonie Bolleurs

Relief for baby and child care at the UFS with donation from Fuchs Foundation

The Department of Paediatrics and Child Health at the University of the Free State (UFS) has received relief for their need of specialised healthcare for babies and children with a donation of R1,5 million from the Carl and Emily Fuchs Foundation.

As a result of this, the Beds of Hope campaign was launched today on the Main Campus in Bloemfontein. With the campaign, the department wants to address the serious need for specialised healthcare for babies and children in the central regions of South Africa.

The department is one of four out of 19 children hospitals in South Africa to receive such a donation. .

“We take care of babies and children in the Universitas and Pelonomi Hospitals in Bloemfontein who have a serious need for specialised healthcare. We are, however, the only supplier of this kind of care in the Free State, North West, Eastern Cape and Lesotho and are responsible for the specialised healthcare of more than 100 000 children. Many of our equipment are outdated and must be urgently repaired or replaced,” said Prof. André Venter, Head of the Department of Paediatrics and Child Care at the UFS.

“Because we are concerned about our patients, the department launched the Beds of Hope campaign with the help of the donation we received from the Fuchs Foundation. With the campaign, we aim to raise some R15 million in the space of two years to purchase beds and specialised equipment for the intensive care and high care units for both hospitals,” said Prof. Venter.
According to Prof. Venter, this includes babies and children with needs for specialised healthcare in the fields of intensive care, oncology, cardiology, neurology, endocrinology, gastro-enterology, neonatology and infectious diseases.

“About ten children are currently not receiving the care they need due to the lack of beds in the intensive care unit. Much more neonates can annually receive critical care if we can supply adequate facilities,” said Prof. Venter.

The other hospitals that are also supported by the Fuchs Foundation’s donation are: Healing Jozi Kids, Boikanyo Foundation and the Groote Schuur Hospital’s neonatal department.

The donation is the beginning of the first phase of the national Fuchs Healing Kids Project, which aims to improve the quality of paediatric care in South Africa.

The aim of this phase is to assist the hospitals to develop the systems and skills needed to collect more money. The research part of phase two and the building up of the hospitals’ children trust funds to be self self-supporting, will happen simultaneously. This phase will be launched early in 2008.

Media Release
Issued by: Lacea Loader
Assistant Director: Media Liaison
Tel: 051 401 2584
Cell: 083 645 2454
E-mail: loaderl.stg@ufs.ac.za  
16 November 2007
 

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