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22 July 2020 | Story Nonsindiso Qwabe | Photo Supplied
Tau Tladi.

In times of great difficulty, a tale of hope goes a long way in encouraging one to persevere. Tau Tladi, a second-year LLB extended-programme student who was diagnosed with ataxia – a degenerative disease of the nervous system – at a young age, has conquered many adversities. He is living his life to the fullest, pursuing his dream of becoming a lawyer one day. Because of a brain injury during birth, Tladi struggles to speak, write, or walk. On campus, he makes use of a scribe and reader to write his tests and exams. 

Learning from others key to success

“Living with ataxia means I have improper speech, I struggle to walk properly, my hands can’t grab things properly, and I can’t even write with them.   Seeing other people living with disabilities and still pursuing their dreams has inspired me a lot; it made me realise that I too have the ability to achieve my dreams,” he said. 
While this disability presented him with many hindrances in life, it has never held him back. “Growing up was challenging because I was not able to develop like other children. As I got older, I could not experience some of the things that other kids could do, such as playing and running around,” he said.

Triumph in the face of adversity
 
Despite all the challenges, Tau completed his matric in 2016 and was even named as one of the top 100 achievers in the Free State. He describes his admission to the LLB programme as a dream come true. “I have always wanted to study an LLB degree. It is the best feeling ever to be at university and studying something that I always wanted to do. I would love to become an attorney.”

Tladi hopes to finish his degree in 2021. He is also an avid sportsman, having participated in the Free State paracycling team and winning first place at the national competition. 

“Living with disability has never been easy for me, so I have learned to be grateful and use every opportunity that I come across and work very hard to fulfil my dreams.”

Hanlie Grobler, Senior Officer in the Faculty of Law, described Tladi as a remarkable young man who always wears a smile on his face. “If you are feeling a bit blue today, cheated by COVID-19, that life is unfair to you – remember this young man who is an excellent example of determination, and do what you have to do, to the best of your ability, and be thankful for what you have.”

News Archive

Haemophilia home infusion workshop
2017-12-17


 Description: haemophilia Tags: Haemophilia, community, patient, clinical skills, training 

Parents receive training for homecare of their children with haemophilia.
Photo Supplied


Caregivers for haemophilia patients, and patients themselves from around the Free State and Northern Cape attended a home infusion workshop held by the Clinical Skills unit in the Faculty of Health Sciences in July 2017. “It felt liberating and I feel confident to give the factor to my son correctly,” said Amanda Chaba-Okeke, the mother of a young patient, at the workshop. Her son, also at the workshop, agreed. “It felt lovely and good to learn how to administer factor VIII.” 

Clinical skills to empower parents and communities

There were two concurrent sessions: one attended by doctors from the Haemophilia Treatment Centre, and the other attended by community members including factor VIII and XI recipients, caregivers and parents. The doctors’ meeting was shown informative videos and demonstrations on how to administer the newly devised factor VII and XI kit, and discussed the pressing need for trained nurses at local clinics. Dr Jaco Joubert, a haematologist, made an educational presentation to the community members.

The South African Haemophilia Foundation was represented by Mahlomola Sewolane, who gave a brief talk about the role of the organisation in relation to the condition. Meanwhile, procedural training in the simulation laboratory involved doctors and nurses helping participants to learn the procedures by using mannequins and even some volunteers from among the patients.

A medical condition causing serious complications
Haemophilia is a medical condition in which the ability of the blood to clot is severely impaired, even from a slight injury. The condition is typically caused by a hereditary lack of a coagulation factor, most often factor VIII. Usually patients must go through replacement therapy in which concentrates of clotting factor VIII (for haemophilia A) or clotting factor IX (for haemophilia B) are slowly dripped or injected into the vein, to help replace the clotting factor that is missing or low. Patients have to receive this treatment in hospital.

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