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25 October 2022 | Story Kekeletso Takang and Samkelo Fetile | Photo Supplied
Talking about gender diversity in institutions of higher learning during the UFS Pride lecture were, from the left: Bokang Fako, Tshifhiwa Ramabulana, Advocate Letlhogonolo Mokgoroane, and Siyanda Magayana.
South Africa is notably one of the most progressive countries on the African continent when it comes to advancing sexual rights. However, despite the constitutional provisions in place, gender identity remains a source of discrimination for many. 

The Free State Centre for Human Rights at the University of the Free State (UFS), in collaboration with the UFS Gender Equality and Anti-Discrimination Office and intersectional feminist student body The Collective, held a Pride Month Lecture on 17 October 2022 at the Albert Wessels Auditorium on the UFS Bloemfontein Campus to commemorate the very first Pride parade in Africa, which occurred on 13 October 1990. The Collective is a student organisation founded in 2019, the purpose of which is to foster a community for marginalised students. 

The lecture was facilitated by Bokang Fako, Founder and Chairperson of The Collective and Student Assistant at the Free State Centre for Human Rights, and included guest speaker Advocate Letlhogonolo Mokgoroane (they/them) of the Centre for Applied Legal Studies (CALS) at the University of the Witwatersrand and panellists Tshifhiwa Ramabulana (he/him) and Siyanda Magayana (she/her). Ramabulana is a queer writer pursuing an LLB degree at the UFS, and Magayana is a Senior Officer at the Gender Equality and Anti-Discrimination Office on the UFS Qwaqwa Campus. 

Where it all began

The first Pride parade in South Africa took place on 13 October 1990 and was led by Simon Nkoli, an anti-apartheid activist who was also one of the country’s most prominent LGBTQIA+ activists. The march was organised by the Gay and Lesbian Organisation of the Witwatersrand (GLOW), an organisation that raised awareness and established a community of support for black queer people during the apartheid era. October has since been recognised as South African Pride Month and has been celebrated every year. 

“Pride is not a party, it is essentially us protesting that the world doesn’t want us to exist in our fullness,” Advocate Mokgoroane said. They reiterated this by highlighting the need for the development of a sense of co-conspiratorship. Mokgoroane referred to Mathoko’s House, a place of refuge and a haven for many. “Mathoko, based in KwaThema, Ekurhuleni, offered counselling and emotional support to those who took shelter at the house, this is the co-conspiratorship needed in this climate. In the digital and social media era we find ourselves in, where are the likes of Mathoko? Are we only relying on hashtags?” 

Gender diversity in institutions of higher learning 

“For many gender-diverse people, the concept of binary gender – having to choose to express yourself as male or female – is constraining,” Magayana said. She further explained that for gender-diverse people, their identity is about presenting something more outwardly authentic to the world, whether they believe themselves to be differently gendered, or have no gender at all. 

Magayana said some cultures do not recognise gender diversity beyond masculine and feminine. “In residences you find that certain students from different cultures would refuse to associate themselves with LGBTQIA+ students because, according to their culture, it is unacceptable.” She added that this is an issue that must be dealt with, because it is unacceptable that residences are fixated on a binary culture. “The programs at residences are not accommodative – what if I do not identify as male or female? Where do I go?” 

A safer time

Ramabulana explained that there have been many incidents of tangible and intangible discrimination, including hate crimes where gay, lesbian, or transgender people are at huge risk of violence and death. However, he added, LGBTQIA+ people are a lot safer today than in the past. “Although there are myopic, monolithic views of who we are, we are indeed living in a safer time. So, with that said, I will not go deep into my experiences of violence, but I want to encapsulate what the activism and efforts were aimed at, and that is queer joy.” He explained that queer joy is the queer community being able to be free and peacefully celebrate their existence and expanded on how safe he feels in public spaces, and how the law now caters for the different diversity of identities that have always been present among human beings. 

Ramabulana said the UFS is seen as one of the most representative universities in South Africa. “The UFS has made great strides in inclusion, from unisex residences to encouraging conversations around pertinent issues surrounding gender equality,” he said.

News Archive

Higher than expected prevalence of dementia in South African urban black population
2010-09-22

 Prof. Malan Heyns and Mr Rikus van der Poel

Pilot research done by University of the Free State (UFS) indicates that the prevalence of dementia, of which Alzheimer’s disease is only one of the causes, is considerably higher than initially estimated. Clinical tests are now underway to confirm these preliminary findings.

To date it has been incorrectly assumed that dementia is less prevalent among urban black communities. This assumption is strongly disputed by the findings of the current study, which indicates a preliminary prevalence rate of approximately 6% for adults aged 65 years and older in this population group. Previous estimates for Southern Africa have been set at around 2,1%.

The research by the Unit for Professional Training and Services in the Behavioural Sciences (UNIBS) at the UFS and Alzheimer’s South Africa is part of the International 10/66 Dementia Research Group’s (10/66 DRG) initiative to establish the prevalence of dementia worldwide.

Mr Rikus van der Poel, coordinator of the local study, and Prof. Malan Heyns, Principal Investigator, say worldwide 66% of people with dementia live in low and middle income countries. It is expected that it will rise to more than 70% by 2040, and the socio-economic impact of dementia will increase accordingly within this period. 21 September marks World Alzheimer’s Day, and this year the focus is on the global economic impact of dementia. Currently, the world wide cost of dementia exceeds 1% of the total global GDP. If the global cost associated with dementia care was a company, it would be larger than Exxon-Mobil or Wal-Mart.

The researchers also say that of great concern is the fact that South Africa’s public healthcare system is essentially geared toward addressing primary healthcare needs, such as HIV/Aids and tuberculosis. The adult prevalence rate of HIV was 18,1% in 2007. According to UNAIDS figures more than 5,7 million people in South Africa are living with HIV/Aids, with an estimated annual mortality of 300 000. In many instances the deceased are young parents, with the result that the burden of childcare falls back on the elderly, and in many cases elderly grandparents suffering from dementia are left without children to take care of them. “These are but a few reasons that highlight the need for advocacy and awareness regarding dementia and care giving in a growing and increasingly urbanized population,” they say.

Low and middle income countries often lack epidemiological data to provide representative estimates of the regional prevalence of dementia. In general, epidemiological studies are challenging and expensive, especially in multi-cultural environments where the application of research protocols relies heavily on accurate language translations and successfully negotiated community access. Despite these challenges, the local researchers are keen to support advocacy and have joined the international effort to establish the prevalence of dementia through the 10/66 DRG.

The 10/66 DRG is a collective of researchers carrying out population-based research into dementia, non-communicable diseases and ageing in low and middle income countries. 10/66 refers to the two-thirds (66%) of people with dementia living in low and middle income countries, and the 10% or less of population-based research that has been carried out in those regions.

Since its inception in 1998, the 10/66 DRG has conducted population based surveys in 14 catchment areas in ten low and middle income countries, with a specific focus on the prevalence and impact of dementia. South Africa is one of seven LAMICs (low and medium income countries) where new studies have been conducted recently, the others being Puerto Rico, Peru, Mexico, Argentina, China and India.

Mr Van der Poel says participating researchers endeavour to conduct cross-sectional, comprehensive, one-phase surveys of all residents aged 65 and older within a geographically defined area. All centres share the same core minimum dataset with cross-culturally validated assessments (dementia diagnosis and subtypes, mental disorders, physical health, anthropometry, demographics, extensive non-communicable risk factor questionnaires, disability/functioning, health service utilization and caregiver strain).

The local pilot study, funded by Alzheimer’s South Africa, was rolled out through an existing community partnership, the Mangaung University of the Free State Community Partnership Programme (MUCPP).

According to Mr Van der Poel and Prof. Heyns, valuable insights have been gained into the myriad factors at play in establishing an epidemiological research project. The local community has responded positively and the pilot phase in and of itself has managed to promote awareness of the condition. The study has also managed to identify traditional and culture-specific views of dementia and dementia care. In addition, existing community-based networks are being strengthened, since part of the protocol will include the training and development of family caregivers within the local community in Mangaung.

“Like most developing economies, the South African population will experience continued urbanization during the next two decades, along with increased life expectancy. Community-based and residential care facilities for dementia are few and far between and government spending will in all probability continue to address the high demands associated with primary healthcare needs. These are only some of the reasons why epidemiological and related research is an important tool for assisting lobbyists, advocates and policymakers in promoting better care for those affected by dementia.”

Media Release
Issued by: Mangaliso Radebe
Assistant Director: Media Liaison
Tel: 051 401 2828
Cell: 078 460 3320
E-mail: radebemt@ufs.ac.za  
21 September 2010

 

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