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06 December 2021 | Story Martie Miranda and Mosa Moerane | Photo Supplied
The CUADS office promoting accessible learning environments.


Disability inclusive terminology

Twenty years ago, the need was identified to accommodate students with disabilities on the Bloemfontein Campus, and in an attempt to provide an accessible environment and academic life for these students, the Unit for Students with Disabilities was established in February 2001.  The unit started with one staff member, fifteen registered students, and one Braille printer.  Since 2015, the name of the unit has changed to the Centre for Universal Access and Disability Support (CUADS), with offices on all three campuses. There are currently 247 registered students, 13 staff members and three Braille printers, with a pool of ad hoc South African Sign Language interpreters, editors, and amanuensis.


Full integration of students with disabilities 

After 10 years of existence, the unit was ready and committed to look at future possibilities for the full integration of students with disabilities. A lot of work has been done to accommodate students with disabilities across all categories of disability, including study courses, accessibility to buildings, accessibility of learning materials, residences, sporting activities, computer facilities, interpreting services for deaf, hard of hearing, and deafened students, as well as the provision of a specialised exam and test venue for alternative test and exam procedures.

CUADS now forms part of the dynamic student support environment of the Department of Student Affairs, and although the last decade has not been without a lot of growing pains and buy-in from different stakeholders, the centre has aimed to ensure that the University of the Free State (UFS) becomes an accessible higher education institution of choice for students with disabilities. While the primary focus of the support services offered by CUADS is to promote equity for students with disabilities in order to reach academic success, a holistic approach to student participation and success is followed to ensure a humanising experience.  

Universal Access 

CUADS’ involvement with the UFS Integrated Transformation Plan through the Universal Access Work Stream has assisted in integrating disability and universal access matters, which have contributed thus far to the approval of Disability Sport as part of the Integrated Sport Strategy, Disability and Universal Access advocacy as part of the Advocacy, Awareness and Analysis Strategy, including universal access considerations in the UFS Estates Technical Manual for infrastructure, and the Policy on Universal Access and Disability Support for students with disabilities.

Timeline

2001: Establishment of Unit for Students with Disabilities (USD) within Student Counselling and Development
First blind student graduated at the UFS (having been at the UFS without the support service)
2005: First deaf student (Sign Language user) registered, with Sign Language interpreting services provided
2008: Unit became an independent department within Student Affairs
2009: First full-time Sign Language interpreter appointed
2011: Ten-year celebration, embarking on integration of support to students with disabilities
Celebrating a ramp at the front door of the Callie Human Hall as a graduation venue
2012: Alternative exam arrangements integrated with Exam Division
2013: Sign Language interpretation integrated with Interpreting Services
2014: Accessible transport services established between South Campus and Bloemfontein Campus with First Car sponsorship
2015: Name change to Centre for Universal Access and Disability Support (CUADS) and adopting universal access as approach to include students with disabilities
2016: Documenting 40 graduates with disabilities in one year for the first time, which repeated itself in the following years
2017: Became part of the UFS transformation agenda through the UFS Integrated Transformation Plan

Mental health challenges added as a category of students with disabilities supported by CUADS
Formalised orientation and mobility training for students with visual impairments to enable independent movement around our three campuses

2018: Establishment of CUADS offices on South Campus and Qwaqwa Campus, with CUADS coordinators appointed
First Biennial CUADS Formal Function held
2019: Commenced with tactile paving project on Bloemfontein Campus
2020: Disability Sport integrated into ITP Sport Strategy
Disability and Universal Access advocacy integrated with ITP Advocacy, Awareness and Analysis Strategy
2021: Policy on Universal Access and Disability Support for students with disabilities approved by Council
Universal access considerations within the UFS Estates Technical Manual for infrastructure.

News Archive

Higher than expected prevalence of dementia in South African urban black population
2010-09-22

 Prof. Malan Heyns and Mr Rikus van der Poel

Pilot research done by University of the Free State (UFS) indicates that the prevalence of dementia, of which Alzheimer’s disease is only one of the causes, is considerably higher than initially estimated. Clinical tests are now underway to confirm these preliminary findings.

To date it has been incorrectly assumed that dementia is less prevalent among urban black communities. This assumption is strongly disputed by the findings of the current study, which indicates a preliminary prevalence rate of approximately 6% for adults aged 65 years and older in this population group. Previous estimates for Southern Africa have been set at around 2,1%.

The research by the Unit for Professional Training and Services in the Behavioural Sciences (UNIBS) at the UFS and Alzheimer’s South Africa is part of the International 10/66 Dementia Research Group’s (10/66 DRG) initiative to establish the prevalence of dementia worldwide.

Mr Rikus van der Poel, coordinator of the local study, and Prof. Malan Heyns, Principal Investigator, say worldwide 66% of people with dementia live in low and middle income countries. It is expected that it will rise to more than 70% by 2040, and the socio-economic impact of dementia will increase accordingly within this period. 21 September marks World Alzheimer’s Day, and this year the focus is on the global economic impact of dementia. Currently, the world wide cost of dementia exceeds 1% of the total global GDP. If the global cost associated with dementia care was a company, it would be larger than Exxon-Mobil or Wal-Mart.

The researchers also say that of great concern is the fact that South Africa’s public healthcare system is essentially geared toward addressing primary healthcare needs, such as HIV/Aids and tuberculosis. The adult prevalence rate of HIV was 18,1% in 2007. According to UNAIDS figures more than 5,7 million people in South Africa are living with HIV/Aids, with an estimated annual mortality of 300 000. In many instances the deceased are young parents, with the result that the burden of childcare falls back on the elderly, and in many cases elderly grandparents suffering from dementia are left without children to take care of them. “These are but a few reasons that highlight the need for advocacy and awareness regarding dementia and care giving in a growing and increasingly urbanized population,” they say.

Low and middle income countries often lack epidemiological data to provide representative estimates of the regional prevalence of dementia. In general, epidemiological studies are challenging and expensive, especially in multi-cultural environments where the application of research protocols relies heavily on accurate language translations and successfully negotiated community access. Despite these challenges, the local researchers are keen to support advocacy and have joined the international effort to establish the prevalence of dementia through the 10/66 DRG.

The 10/66 DRG is a collective of researchers carrying out population-based research into dementia, non-communicable diseases and ageing in low and middle income countries. 10/66 refers to the two-thirds (66%) of people with dementia living in low and middle income countries, and the 10% or less of population-based research that has been carried out in those regions.

Since its inception in 1998, the 10/66 DRG has conducted population based surveys in 14 catchment areas in ten low and middle income countries, with a specific focus on the prevalence and impact of dementia. South Africa is one of seven LAMICs (low and medium income countries) where new studies have been conducted recently, the others being Puerto Rico, Peru, Mexico, Argentina, China and India.

Mr Van der Poel says participating researchers endeavour to conduct cross-sectional, comprehensive, one-phase surveys of all residents aged 65 and older within a geographically defined area. All centres share the same core minimum dataset with cross-culturally validated assessments (dementia diagnosis and subtypes, mental disorders, physical health, anthropometry, demographics, extensive non-communicable risk factor questionnaires, disability/functioning, health service utilization and caregiver strain).

The local pilot study, funded by Alzheimer’s South Africa, was rolled out through an existing community partnership, the Mangaung University of the Free State Community Partnership Programme (MUCPP).

According to Mr Van der Poel and Prof. Heyns, valuable insights have been gained into the myriad factors at play in establishing an epidemiological research project. The local community has responded positively and the pilot phase in and of itself has managed to promote awareness of the condition. The study has also managed to identify traditional and culture-specific views of dementia and dementia care. In addition, existing community-based networks are being strengthened, since part of the protocol will include the training and development of family caregivers within the local community in Mangaung.

“Like most developing economies, the South African population will experience continued urbanization during the next two decades, along with increased life expectancy. Community-based and residential care facilities for dementia are few and far between and government spending will in all probability continue to address the high demands associated with primary healthcare needs. These are only some of the reasons why epidemiological and related research is an important tool for assisting lobbyists, advocates and policymakers in promoting better care for those affected by dementia.”

Media Release
Issued by: Mangaliso Radebe
Assistant Director: Media Liaison
Tel: 051 401 2828
Cell: 078 460 3320
E-mail: radebemt@ufs.ac.za  
21 September 2010

 

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