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23 September 2022 | Story Rulanzen Martin | Photo Rulanzen Martin
Renata van Reenen
Renata van Reenen has been a South African Sign Language (SASL) champion since primary school, and she is using her postgraduate degree to further SASL in higher education.

Renata van Reenen, a master’s student at the University of the Free State (UFS), recalls how a school talk in 1998 by Deaf activist Johan Gouws instilled in her a kind of ‘duty’ to become a champion for Deaf people. Van Reenen, who in 1987 became the first Deaf child in South Africa to receive a cochlear implant, says it was at this talk that she realised that, as a Deaf person, she has her own language, identity, and culture – and that she is not “a person with a disability”. 

Van Reenen is currently a language facilitator in the UFS Department of South African Sign Language (SASL) and Deaf Studies, and she believes that Deaf students should be empowered to embrace their attributes. Her interests include exploring different sign languages around the world, Deaf issues, and how Deaf children are supported in schools for the Deaf. “One of my hobbies is to put my creative ideas on paper, and I would like to develop and record these stories in SASL so they can be accessible to Deaf schools as resource materials,” she says. “These materials would then also be accessible when teaching the subject South African Sign Language as a Home Language.”

Van Reenen, who worked as an assistant teacher at a school for the Deaf for seven years, is passionate about SASL and the lived experiences of the Deaf. We asked her to share some views on empowering the Deaf and SASL: 

Why is it important to empower Deaf students?

When I was 17, I had no Deaf identity. I did not understand sign language and how it was used – when the Deaf person gave a speech at the school, it changed my life. I realised that I am a Deaf person with my own language, identity, and culture, and that I am not a person with a disability. I strongly believe that Deaf students need to be empowered to fully embrace their identity, language, and culture, and through this expectance show the world who we are. My favourite motto I always share with my Deaf learners is: “Believe in yourself, show them what you can do.” I also encourage them to continuously teach Hearing students the beautiful language, as the famous Deaf quote states: “Sign language is the noblest gift God has given to Deaf people.” George Veditz, the former president of the National Association of the Deaf of the United States, said, “As long as we have Deaf people on Earth, we will have signs.” He protected our language at a time (the early 20th century) when the world strongly believed that Deaf people had to learn through oralism and had to learn spoken language in order to function as a “normal person” alongside hearing people.

As a Deaf person, do you believe the UFS community is doing enough to accommodate you, and how do you feel about being part of the Department of SASL and Deaf Studies? 

When I received a link for a workshop I had to attend, I was so overwhelmed when I saw the interpreter on the video link, and knew that it would be extremely helpful for me during my research. The UFS Centre for Universal Access and Disability Support made sure I have full access to any workshops the university provides. It is amazing that my supervisor can also sign. That made me feel at home, being in a Deaf world without communication barriers. The department is an amazing team that supports and encourages me during my studies.

What will you be doing in honour of Deaf Awareness Month?

The SASL Department and I, along with Deaf Studies, have organised a “Signing Space” event in September to bring Deaf and Hearing students together to socialise with each other. This event will give Hearing students the opportunity to learn about the Deaf world. During this event I will give a small presentation such as “Poetry in SASL” that will show that Deaf people have their own literature, and that it forms part of their language, SASL. We will not only focus on presentations but also on fun activities, such as games that are prominent within the Deaf community. 

Why did you decide to pursue your MA at the UFS? 

During the coronavirus pandemic I applied to the University of Gallaudet in Washington, DC to study for a Master of Education in Sign Language degree. Gallaudet is the world's only university in which all programmes and services are specifically designed to accommodate deaf and hard of hearing students. I was accepted to study further and to ultimately become a teacher or lecturer. My aim was to train Deaf adults to qualify in different areas of SASL, ranging from SASL Linguistics, SASL Pedagogy, SASL Media Production, and so forth. In an ideal world these could be offered as short courses through some tertiary institutions which already offer SASL on undergraduate and postgraduate levels. Unfortunately, I did not have enough support, but I did not let it stop my dream. I decided to change my university of choice and applied at the University of the Free State. I am pursuing my MA degree and continuing my studies as a Deaf person. The University of the Free State is providing and recognising SASL. This is a positive step, as South African Sign Language will soon be the twelfth official language of South Africa.

News Archive

Higher than expected prevalence of dementia in South African urban black population
2010-09-22

 Prof. Malan Heyns and Mr Rikus van der Poel

Pilot research done by University of the Free State (UFS) indicates that the prevalence of dementia, of which Alzheimer’s disease is only one of the causes, is considerably higher than initially estimated. Clinical tests are now underway to confirm these preliminary findings.

To date it has been incorrectly assumed that dementia is less prevalent among urban black communities. This assumption is strongly disputed by the findings of the current study, which indicates a preliminary prevalence rate of approximately 6% for adults aged 65 years and older in this population group. Previous estimates for Southern Africa have been set at around 2,1%.

The research by the Unit for Professional Training and Services in the Behavioural Sciences (UNIBS) at the UFS and Alzheimer’s South Africa is part of the International 10/66 Dementia Research Group’s (10/66 DRG) initiative to establish the prevalence of dementia worldwide.

Mr Rikus van der Poel, coordinator of the local study, and Prof. Malan Heyns, Principal Investigator, say worldwide 66% of people with dementia live in low and middle income countries. It is expected that it will rise to more than 70% by 2040, and the socio-economic impact of dementia will increase accordingly within this period. 21 September marks World Alzheimer’s Day, and this year the focus is on the global economic impact of dementia. Currently, the world wide cost of dementia exceeds 1% of the total global GDP. If the global cost associated with dementia care was a company, it would be larger than Exxon-Mobil or Wal-Mart.

The researchers also say that of great concern is the fact that South Africa’s public healthcare system is essentially geared toward addressing primary healthcare needs, such as HIV/Aids and tuberculosis. The adult prevalence rate of HIV was 18,1% in 2007. According to UNAIDS figures more than 5,7 million people in South Africa are living with HIV/Aids, with an estimated annual mortality of 300 000. In many instances the deceased are young parents, with the result that the burden of childcare falls back on the elderly, and in many cases elderly grandparents suffering from dementia are left without children to take care of them. “These are but a few reasons that highlight the need for advocacy and awareness regarding dementia and care giving in a growing and increasingly urbanized population,” they say.

Low and middle income countries often lack epidemiological data to provide representative estimates of the regional prevalence of dementia. In general, epidemiological studies are challenging and expensive, especially in multi-cultural environments where the application of research protocols relies heavily on accurate language translations and successfully negotiated community access. Despite these challenges, the local researchers are keen to support advocacy and have joined the international effort to establish the prevalence of dementia through the 10/66 DRG.

The 10/66 DRG is a collective of researchers carrying out population-based research into dementia, non-communicable diseases and ageing in low and middle income countries. 10/66 refers to the two-thirds (66%) of people with dementia living in low and middle income countries, and the 10% or less of population-based research that has been carried out in those regions.

Since its inception in 1998, the 10/66 DRG has conducted population based surveys in 14 catchment areas in ten low and middle income countries, with a specific focus on the prevalence and impact of dementia. South Africa is one of seven LAMICs (low and medium income countries) where new studies have been conducted recently, the others being Puerto Rico, Peru, Mexico, Argentina, China and India.

Mr Van der Poel says participating researchers endeavour to conduct cross-sectional, comprehensive, one-phase surveys of all residents aged 65 and older within a geographically defined area. All centres share the same core minimum dataset with cross-culturally validated assessments (dementia diagnosis and subtypes, mental disorders, physical health, anthropometry, demographics, extensive non-communicable risk factor questionnaires, disability/functioning, health service utilization and caregiver strain).

The local pilot study, funded by Alzheimer’s South Africa, was rolled out through an existing community partnership, the Mangaung University of the Free State Community Partnership Programme (MUCPP).

According to Mr Van der Poel and Prof. Heyns, valuable insights have been gained into the myriad factors at play in establishing an epidemiological research project. The local community has responded positively and the pilot phase in and of itself has managed to promote awareness of the condition. The study has also managed to identify traditional and culture-specific views of dementia and dementia care. In addition, existing community-based networks are being strengthened, since part of the protocol will include the training and development of family caregivers within the local community in Mangaung.

“Like most developing economies, the South African population will experience continued urbanization during the next two decades, along with increased life expectancy. Community-based and residential care facilities for dementia are few and far between and government spending will in all probability continue to address the high demands associated with primary healthcare needs. These are only some of the reasons why epidemiological and related research is an important tool for assisting lobbyists, advocates and policymakers in promoting better care for those affected by dementia.”

Media Release
Issued by: Mangaliso Radebe
Assistant Director: Media Liaison
Tel: 051 401 2828
Cell: 078 460 3320
E-mail: radebemt@ufs.ac.za  
21 September 2010

 

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