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21 February 2024 | Story Leonie Bolleurs | Photo SUPPLIED
Bridging Knowledge Cultures
A group of academics from the University of the Free State (UFS) and the North-West University (NWU) contributed to a chapter in the book Bridging Knowledge Cultures in Rural Health Education, which was recently launched during an online event.

The Directorate of Community Engagement at the University of the Free State (UFS) celebrated the publication of a chapter in the book, Bridging Knowledge Cultures. This transformative book was edited by Walter Lepore, Budd Hall, and Rajesh Tandon, Unesco co-chairs of the Unesco Chair in Community Based Research and Social Responsibility in Higher Education.

Chapter 10 of the book – ‘Bridging Knowledge Cultures in Rural Health Education’ – was contributed by a group of academics from the UFS and the North-West University (NWU). The UFS contributors included Dr Karen Venter, Head of Service-Learning in the Directorate of Community Engagement; Alfi Moolman, former coordinator in the same department; and Dr René Walter Botha, Coordinator for Community Based Education and Rural Health in the Faculty of Health Sciences. From the NWU, the contributors included Prof Lesley Wood, Extraordinary Professor in Community-Based Educational Research; Beatrix (Bibi) Bouwman, Director for Sustainability and Community Impact; and Prof Hendri Coetzee, Extraordinary Associate Professor in the North-West University’s COMPRES research unit.

Identify knowledge differences/gaps

According to Dr Venter, the study conducted in the Xhariep District was considered a unique context for an in-depth exploration of participants’ subjective experiences to identify knowledge differences/gaps, and recommendations to bridge them. She states, “The aim of the initiative was to improve health outcomes by establishing lifestyle groups to enable the sharing of health information among participants and thereby encourage sustainable, accountable lifestyle practices.” 

Three questions derived from the case study were discussed during the launch: Who has the right to create knowledge? Who decides if knowledge is valid? And who will have access to the knowledge?

Other case studies included in the book also explored the dynamics of equitable research partnerships, providing practical recommendations to overcome obstacles and forge effective collaboration between academia and diverse communities.

Embrace the richness of diverse perspectives

Dr Venter believes that the launch event inspired the next generation of researchers and professionals to embrace the richness of diverse perspectives and knowledge cultures.

To access the rest of the case studies, including those from Indonesia, Malaysia, and India, you can download the book here. Access the discussion on YouTube here.

Parallel to the book, a guide was launched: Bridging Knowledge Cultures: A Guide for Community Practitioners and Community Organisations. You can access a copy here.

News Archive

The silent struggles of those with invisible disabilities
2016-12-13

Description: Dr Magteld Smith, invisible disabilities Tags: Dr Magteld Smith, invisible disabilities 

Dr Magteld Smith, researcher and deaf awareness
activist, from the Department of Otorhinolaryngology
at the UFS.

December is International Disability Awareness Month. Despite equality before the law and some improvements in societal attitudes, people with disabilities are still disadvantaged in many aspects of their lives. They are more likely to be the victims of crime, sexual abuse, are more likely to earn a low income or be unemployed, and less likely to gain qualifications than people without disabilities.

Demystifying disabilities is crucial

Dr Magteld Smith, a researcher at the University of the Free State (UFS) School of Medicine’s Department of Otorhinolaryngology, says that often people think the term “disability” only refers to people using a wheelchair, etc. However, this is a misperception because some individuals have visible disabilities, which can be seen, and some have invisible disabilities, which can’t be seen. Others have both visible and invisible disabilities. There is an ongoing debate as to which group has the greatest life struggles. Those with visible disabilities frequently have to explain what they can do, while individuals with invisible disabilities have to make clear what they cannot do.

Invisible disability is an umbrella term that captures a whole spectrum of invisible disabilities and the focus is not to maintain a list of specific conditions and diagnoses that are considered invisible disabilities. Invisible disabilities include debilitating fatigue, pain, cognitive dysfunctions, mental disorders, hearing and eyesight disabilities and conditions that are primarily neurological in nature.

Judging books by their covers
According to Dr Smith, research indicates that people living with invisible disabilities often suffer more strained relationships than those with visible disabilities due to a serious lack of knowledge, doubts and suspicion around their disability status.

Society might also make serious allegations that people with invisible disabilities are “faking it” or believe they are “lazy”, and sometimes think they are using their invisible disability as an “excuse” to receive “special treatment”, while the person has special needs to function.

Giving recognition and praise
“One of the most heartbreaking attitudes towards persons with invisible disabilities is that they very seldom enjoy acknowledgement for their efforts and accomplishments. The media also seldom report on the achievements of persons with invisible disabilities,” says Dr Smith.

Society has to understand that a person with a disability or disabilities is diagnosed by a medical professional involving various medical procedures and tests. It is not for a society to make any diagnosis of another person.

Dr Smith says the best place to start addressing misperceptions is for society to broaden its understanding of the vast, varying world of disabilities and be more sensitive about people with invisible disabilities. They should be acknowledged and given the same recognition as people with visible disabilities.

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