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07 October 2024 | Story André Damons | Photo Supplied
Deaf awareness Campaign 2024
Boipelo Leteane, Amahle Jemane, Zinzile Sibiya (Speech-Language Pathologist at UAH), Ntsatsi Dingaan-Mokushane, Andani Madzivhandila, Yolanda Nzume (Administration Clerk at UAH) and Dr Phindile Shangase at the Deaf Awareness Campaign at the UFS.

The Department of Speech Therapy and Audiology at Universitas Academic Hospital (UAH), in partnership with the Division of Public Health at the University of the Free State (UFS) recently held their annual Deaf Awareness Campaign with much success.

The campaign, which is the brainchild of Andani Madzivhandila, a Cochlear Implant MAPping Audiologist at Universitas Academic Hospital (UAH), is in its second year and was attended by Deaf students from the UFS, community members and academics from the UFS Faculty of Health Sciences, including Dr Phindile Shangase from the Division of Public Health at the UFS in collaboration with UAH Speech Therapy and Audiology staff.

Purpose of the event

The event took place on 28 September 2024 in the foyer of the Francoise Retief building. September is the International Month for Deaf People. The Department of Otorhinolaryngology and Med-EL assisted with some sponsorship to make the event a success. Ntsatsi Dingaan-Mokushane, the Assistant Director for Speech Therapy and Audiology at UAH, opened the ceremony and highlighted the importance of Deaf Awareness Campaigns in general and further elaborated on the World Federation of the Deaf theme for 2024, which is “Sign up for sign language rights”.

Dr Shangase shared her experiences and challenges of living with hearing loss and how she manages it, and further elaborated that the purpose of the event was to raise awareness of the different types of hearing loss, especially deafness. It was also to raise awareness of the challenges encountered by Deaf people and to discuss available technologies to assist those with hearing loss as well as those who are born profoundly Deaf.

The event is organised to share experiences from professionals, those with hearing loss as well as the Deaf community, to share experiences on coping and managing life with hearing loss as well as deafness. The organisers try to educate the public about Deaf culture, sign language and the experiences of Deaf people and to help combat stereotypes, stigmas and misconceptions surrounding deafness. The event is also to promote inclusion and encourage equal access to education, employment, healthcare as well as breaking down communication barriers and address systemic and social barriers that hinder Deaf individuals’ participation.

Sharing lived experiences

According to Dr Shangase, the event highlighted the progress as well as gaps in support interventions for those who live with hearing loss and deafness. Says Dr Shangase: “Availability of technologies was highlighted as facilitating different forms of participation for those with hearing loss and deafness. However, it was clear that most of the available technologies are not being adopted in workplaces as well as in communities.”

Boipelo Leteane, a parent of a two-year-old child who was born deaf, shared her experiences and her journey before and after her child had undergone a cochlear implant, while Madzivhandila shed some light on the challenges faced by healthcare professionals when hearing loss/deafness is diagnosed and needs to be managed. 

Amahle Jemane also shared her personal experiences and challenges she faces daily as a signing young female in South Africa, where the majority of the population use spoken language, and she uses South African Sign Language (SASL). 

News Archive

UFS cardiac team leading with project
2017-05-31

 Description: Cardiac team read more Tags: Cardiac team read more

Prof Peter Schultheiss of the Charité University in Berlin,
Germany, visited the Robert WM Frater Centre for
Cardiovascular Research at the UFS for a study regarding
cardiomyopathy, a significant cause of fatal heart failure
among Africans. From the left are Dr Glen Taylor,
Dr Danie Buys, Prof Makoali Makatoko,
Prof Schultheiss and Prof Francis Smit.
Photo: Rulanzen Martin

A team of cardiac doctors associated with the Robert WM Frater Cardiovascular Research Centre at the University of the Free State’s (UFS) Faculty of Health Sciences has commenced with a pioneering research project regarding idiopathic dilating cardiomyopathy.  

An Afrocentric research focus
Prof Francis Smit, Head of the Department of Cardiothoracic Surgery at the UFS and Head of the Frater Centre, describes dilating cardiomyopathy as a heart muscle disease that is quite common, particularly among people of African descent. The disease weakens the heart muscle, which in turn leads to heart failure.

“To date there is no curable treatment for this condition and 50% of patients that have shown heart failure, died within a period of five years. The causes of this condition have been unknown in the majority of patients. But over the past few years major strides have been made where virus infections of the heart muscle or myocarditis have been identified as a possible underlying cause. Various genetic diseases are also linked to it,” says Prof Smit.

International collaborations ensure success
According to Prof Smit, the project is being run in conjunction with Prof Heinz-Peter Schultheiss of the Charité University and the Institute for Cardiac Diagnostics and Therapy in Berlin, Germany.

“We have been working on the project over the past 18 months and I have twice visited Prof Schultheiss in Germany. He is now visiting us in Bloemfontein. We have established a collaborative project focused on patients in central South Africa”.
Prof Schultheiss is a world leader regarding the diagnosis, pathology and treatment of dilating cardiomyopathy, says Prof Smit.

“He brings a lifetime of research experience to Bloemfontein and is internationally renowned as the father of myocardial or heart muscle biopsies.

“His pioneering work on the discipline has led to diagnostic accuracy that has induced purposeful and personalised treatment of dilating cardiomyopathy and has brought about dramatic changes in some subsets of patients’ life expectancy and their cure.”

Solving problems close to home
According to Prof Mokoali Makatoko, Head of the Department of Cardiology, there are more than 1500 new cases of heart failure identified annually at the Universitas Academic Hospital, of which approximately 30% are attributed to cardiomyopathy. “With the use of endomyocardial biopsies the team hopes to treat viruses unique to Southern Africa as well as other underlying causes of dilating cardiomyopathy.”

Prof Stephen Brown, Head of Paediatric Cardiology at the Universitas Academic Hospital, says children suffering from this disease never reach a mature age and those under his supervision will also be undergoing these tests. Various other departments at the UFS will also participate in this project. Profs Makatoko and Brown did the first four endomyocardial biopsies under the management of Prof Schultheiss during the past week. The results will be available in the coming weeks after which the project will be officially launched and patient recruitment will start in earnest.

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