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Campaign raises hearing loss and Deaf awareness

07 October 2024 | Story André Damons | Photo Supplied

Deaf awareness Campaign 2024 — Boipelo Leteane, Amahle Jemane, Zinzile Sibiya (Speech-Language Pathologist at UAH), Ntsatsi Dingaan-Mokushane, Andani Madzivhandila, Yolanda Nzume (Administration Clerk at UAH) and Dr Phindile Shangase at the Deaf Awareness Campaign at the UFS.

The Department of Speech Therapy and Audiology at Universitas Academic Hospital (UAH), in partnership with the Division of Public Health at the University of the Free State (UFS) recently held their annual Deaf Awareness Campaign with much success.

The campaign, which is the brainchild of Andani Madzivhandila, a Cochlear Implant MAPping Audiologist at Universitas Academic Hospital (UAH), is in its second year and was attended by Deaf students from the UFS, community members and academics from the UFS Faculty of Health Sciences, including Dr Phindile Shangase from the Division of Public Health at the UFS in collaboration with UAH Speech Therapy and Audiology staff.

Purpose of the event

The event took place on 28 September 2024 in the foyer of the Francoise Retief building. September is the International Month for Deaf People. The Department of Otorhinolaryngology and Med-EL assisted with some sponsorship to make the event a success. Ntsatsi Dingaan-Mokushane, the Assistant Director for Speech Therapy and Audiology at UAH, opened the ceremony and highlighted the importance of Deaf Awareness Campaigns in general and further elaborated on the World Federation of the Deaf theme for 2024, which is “Sign up for sign language rights”.

Dr Shangase shared her experiences and challenges of living with hearing loss and how she manages it, and further elaborated that the purpose of the event was to raise awareness of the different types of hearing loss, especially deafness. It was also to raise awareness of the challenges encountered by Deaf people and to discuss available technologies to assist those with hearing loss as well as those who are born profoundly Deaf.

The event is organised to share experiences from professionals, those with hearing loss as well as the Deaf community, to share experiences on coping and managing life with hearing loss as well as deafness. The organisers try to educate the public about Deaf culture, sign language and the experiences of Deaf people and to help combat stereotypes, stigmas and misconceptions surrounding deafness. The event is also to promote inclusion and encourage equal access to education, employment, healthcare as well as breaking down communication barriers and address systemic and social barriers that hinder Deaf individuals’ participation.

Sharing lived experiences

According to Dr Shangase, the event highlighted the progress as well as gaps in support interventions for those who live with hearing loss and deafness. Says Dr Shangase: “Availability of technologies was highlighted as facilitating different forms of participation for those with hearing loss and deafness. However, it was clear that most of the available technologies are not being adopted in workplaces as well as in communities.”

Boipelo Leteane, a parent of a two-year-old child who was born deaf, shared her experiences and her journey before and after her child had undergone a cochlear implant, while Madzivhandila shed some light on the challenges faced by healthcare professionals when hearing loss/deafness is diagnosed and needs to be managed.

Amahle Jemane also shared her personal experiences and challenges she faces daily as a signing young female in South Africa, where the majority of the population use spoken language, and she uses South African Sign Language (SASL).

News Archive

The silent struggles of those with invisible disabilities

2016-12-13

Dr Magteld Smith, researcher and deaf awareness
activist, from the Department of Otorhinolaryngology
at the UFS.

December is International Disability Awareness Month. Despite equality before the law and some improvements in societal attitudes, people with disabilities are still disadvantaged in many aspects of their lives. They are more likely to be the victims of crime, sexual abuse, are more likely to earn a low income or be unemployed, and less likely to gain qualifications than people without disabilities.

Demystifying disabilities is crucial
Dr Magteld Smith, a researcher at the University of the Free State (UFS) School of Medicine’s Department of Otorhinolaryngology, says that often people think the term “disability” only refers to people using a wheelchair, etc. However, this is a misperception because some individuals have visible disabilities, which can be seen, and some have invisible disabilities, which can’t be seen. Others have both visible and invisible disabilities. There is an ongoing debate as to which group has the greatest life struggles. Those with visible disabilities frequently have to explain what they can do, while individuals with invisible disabilities have to make clear what they cannot do.

Invisible disability is an umbrella term that captures a whole spectrum of invisible disabilities and the focus is not to maintain a list of specific conditions and diagnoses that are considered invisible disabilities. Invisible disabilities include debilitating fatigue, pain, cognitive dysfunctions, mental disorders, hearing and eyesight disabilities and conditions that are primarily neurological in nature.

Judging books by their covers
According to Dr Smith, research indicates that people living with invisible disabilities often suffer more strained relationships than those with visible disabilities due to a serious lack of knowledge, doubts and suspicion around their disability status.

Society might also make serious allegations that people with invisible disabilities are “faking it” or believe they are “lazy”, and sometimes think they are using their invisible disability as an “excuse” to receive “special treatment”, while the person has special needs to function.

Giving recognition and praise
“One of the most heartbreaking attitudes towards persons with invisible disabilities is that they very seldom enjoy acknowledgement for their efforts and accomplishments. The media also seldom report on the achievements of persons with invisible disabilities,” says Dr Smith.

Society has to understand that a person with a disability or disabilities is diagnosed by a medical professional involving various medical procedures and tests. It is not for a society to make any diagnosis of another person.

Dr Smith says the best place to start addressing misperceptions is for society to broaden its understanding of the vast, varying world of disabilities and be more sensitive about people with invisible disabilities. They should be acknowledged and given the same recognition as people with visible disabilities.

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