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09 October 2023 | Story André Damons | Photo André Damons
A multimillion-rand grant will assist UFS to develop palliative care structures and services in FS
The palliative care team consists of (at the back, from l.t.r) Rethabile Matuka (M&E Officer), Matron Mitta Sauli and Khomotso Makhura (social worker student). In the middle: Viaan Lucas (left, social worker) and Thobeka Maziya (social worker student). In front: Sr Elizabeth Lekoeneha, Dr Dalene van Jaarsveld and Prof Alicia Sherriff.

A multimillion-rand grant will assist the Department of Oncology at the University of the Free State (UFS) to initiate the implementation of palliative care services in the Free State province and help to improve the quality of life of patients and their families living with a life-threatening disease.

The grant from the Bristol Myers Squibb Foundation (BMSF) has already improved the quality of life for patients living with advanced progressive life-threatening diseases (cancer, renal failure, heart failure, AIDS, lung disease) as well as for their families. Prof Alicia Sherriff, head of the UFS Department of Oncology, and Dr Dalene van Jaarsveld, Lecturer and Medical Specialist in the same department, are project leaders for the grant that UFS administers. The grant is for a period three years.

According to Dr Van Jaarsveld, they have also planned for a 10-bed inpatient facility at the Universitas Academic Complex that will be able to accommodate a family member of patients receiving care in preparation for their down referral for home-based care. This unit will also be used as a training facility for all undergraduate health-care students. The grant will provide staff for a limited period to assist the Free State Department of Health (FSDOF) in preparing to absorb the services. They are currently awaiting commitment from the FSDOH to start with renovation of this unit. 

Situation in the Free State 

Palliative care, explains Dr Van Jaarsveld, provides a service that improves the quality of life of a patient, and his/her family, diagnosed with a life-limited disease. “It is not only for patients who are terminally ill and should ideally be implemented much earlier in the patient's disease journey. Palliative care is a basic human right,” she says. 

“A National Policy Framework and strategy on the implementation on palliative care for South Africa for 2012-2022 was published by National Department of Health. We recognised in 2019 that there was no implementation initiated in the Free State, and no budget allocated to the implementation of this critical service.  

“Many patients in the province live with these advanced progressive diseases and experience a very poor quality of life that translates into a poor quality of death with a high symptom-burden and suffering during their last days. Similarly, the family will suffer immensely,” says Dr Van Jaarsveld. 

Prof Sherriff says they applied for this international grant to assist with the startup of these structures while the FSDOH is given the opportunity to setup the necessary budget to ensure long-term sustainability of this human right as a health-care service. 

In the Free State about 16,000 patients die every year with a high need for palliative care. Dr Van Jaarsveld says of the 15 functioning hospices in 2014 and home-based carers that were offering hospice care in most of the sub-districts in the Free State, there are only four registered hospices remaining. Of these only one has four beds where patients can be admitted. The others provide limited care to a very small area, leaving most of the districts in the Free State without any form of palliative care and support.  Most of the other provinces have different levels of palliative-care services available. The grant provides funds to initiate the implementation of this service in the Free State. 

They are working closely with the FSDOH on a provincial implementation plan that will eventually, once the grant has ended, be taken forward by the province, says Dr Van Jaarsveld. 

Impact of the grant

Through the grant a project manager, professional nurse and administrative support are employed as part of a core team at Universitas Academic Hospital with a social worker. They have received training in palliative care supported by the grant. This team, together with Dr van Jaarsveld, provides a consultation service at the Universitas Academic Hospital Complex. 

“Nearly 700 patients have been referred for palliative care in the past year and have therefore benefited (with their families) from the grant. Another two professional nurses have been employed via the grant as hub managers for the Thabo Mofutsanyane and Lejweleputswa districts. Both are currently doing training in palliative care. Once a patient is seen by the team, a palliative care plan is developed, family meetings are held, and a discharge care plan set in place. 

“To ensure continuity of care, the patients are handed over to one of the nurses managing the districts where the patients are from for further follow-up and support. This is sadly not possible in all districts,” says Dr Van Jaarsveld. 

With the grant, the palliative care team, in close collaboration with Hospice Bloemfontein, have started with accredited palliative care training for nurses and other health professionals working for the FSDOH in all districts of the province. This will help with down-referral pathways and support for patients from districts without a dedicated palliative care nurse. 

UFS and Vision 130

Dr Claire Armour Barrett, Head: Research and Development in the School of Clinical Medicine at UFS says this project is critically aligned with the second key tenet of the UFS Vision 130, maximum societal impact with sustainable relationships. Although this project is still in its early phase, almost 700 patients and as many as 2100 family members have been positively affected by this work. 

“We believe that we are bringing the UFS closer to the theme of the World Hospice and Palliative Care Day for 2023, Compassionate Communities: Together for Palliative Care. We are actively increasing awareness in communities, advocating for patients and families in need not only through service delivery, but also by education and collaboration. We are stronger together.”

World Hospice and Palliative Care Day is celebrated every year on 14 October.

News Archive

UFS launches history book
2007-02-02

 

Attending the launch of the UFS history book were, from the left: Prof Stef Coetzee, Prof Francois Retief, Prof Wynand Mouton, Mr Pieter Cox (Chairperson on Sasol) and Prof Frederick Fourie (Rector and Vice-Chancellor of the UFS). Profs Coetzee, Retief and Mouton are former rectors of the UFS.
UFS launches history book
 
The University of the Free State (UFS) today launched its history book titled, From Grey to Gold, on the Main Campus in Bloemfontein.
 
“The history of the UFS is one of faith, hope, struggle and determination. The book tells a fascinating story that stretches over a 100 years. It is divided into five main phases, which tells about the growth of the UFS from a poor Free State community to a mature university. Interesting stories about student days, sport, rag and hostel activities are included in each phase,” Prof Frederick Fourie, Rector and Vice-Chancellor said during the launch of the book.
 
“One cannot know where you are going if you don’t know where you are coming from. You have a clearer idea of the issues facing an institution if you know the history. A book like this one is also an important source of reference for staff on the campus,” said Prof Fourie.
 
The first research for the book was done from 1999-2003 by Prof Leo Barnard from the Department of History and a team of researchers. They also compiled the first manuscript. 
 
During the last three years, Prof Fourie was closely involved with the writing of the final phase and finishing off the history book project. “It was an honour to be so closely involved with the story of the UFS because now I have a better understanding of the institution, its people, its culture and its way of thinking. For any rector of a university, such an understanding of its institution is a requirement,” Prof Fourie said.
 
The book is partly sponsored by Sasol. During the launch of the book, Mr Pieter Cox, Chairperson of Sasol said the company and the UFS have been partners for 57 years. “Both Sasol and the UFS are striving for excellence – Sasol for excellence in technology and the UFS for excellence in education,” said Mr Cox. 
 
“It was an easy decision when the UFS approached Sasol for financial support of the history book. Its a formidable piece of work, something Prof Fourie and the UFS can be proud of,” said Mr Cox.
 
The book consists of more than 500 pages with hundreds of photos and a wide range of supplements of office-bearers, awards and achievements (including national and sporting colours). A timeline framework, putting the history of the UFS in context with the history of the Free State, South Africa and of the world, is also included.
 
Besides the supplements, the history book also tells the story of amongst others the establishment of the UFS; the role of its founding fathers; black pioneers of transformation; the establishment and development of academic departments and faculties; student numbers; pioneers and trends in research; academic entrepreneurs; campus issues and campus politics; interesting facts and stories about student life (rag, intervarsity and cheerleaders, sport and the Springboks, hostel traditions); the admission of black students and anguish about race; language and culture; the development of the Main Campus; the Tickey and the Banana and much more.
 
Emphasis is placed on a very high level of quality. “It is not every day that the university becomes hundred years old and the institution will be measured by the quality of the book. We cannot say the UFS is a university of excellence if the book does not reflect that,” Ms Edma Pelzer, Director: Physical Resources and Special Projects said. Ms Pelzer managed the project as part of the last mentioned part of her portfolio.
 
The search for photographs was an important aspect of the book and it was a big task to find photographs and write captions. It took almost a year to translate and prepare the English edition and almost ten months to ensure the accuracy thereof, especially to correctly translate the typical Free State and UFS terminology and naturally to complete the English manuscript’s layout and proofreading. In the mean time the cover pages were designed and in September 2006 the manuscript went into the final print process. The Afrikaans title is: Van Sink tot Sandsteen tot Graniet.  
 
The cost of the book is R380 per copy. Those who already ordered the book will soon receive their copy. Orders can be placed by contacting Mr Dawid Kriel at UFS Marketing on 051 401 3409 or on the UFS web site at www.ufs.ac.za. The book is also available at Van Schaik Book Store on the Thakaneng Bridge, UFS Main Campus and at Fascination Books in Mimosa Mall, Bloemfontein.
 
Media release
Issued by: Lacea Loader
Media Representative
Tel: (051) 401-2584
Cell: 083 645 2454
2 February 2007

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