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16 September 2024 | Story André Damons | Photo Supplied
Dr Mampoi Jonas and Prof Jan Du Plessis
Dr Mampoi Jonas, senior lecturer in Paediatric Oncology and Prof Jan Du Plessis, Head of the Paediatric Oncology Unit at the University of the Free State (UFS).

A campaign like Childhood Cancer Awareness Month is vital in creating awareness and educating people about the early signs and symptoms of certain cancers. This can significantly improve the survival rate of young patients. More than 50% of people diagnosed with cancer live for more than five years, and some types of cancer have survival rates as high as 90%.

This is according to Prof Jan Du Plessis, Head of the Paediatric Oncology Unit, and Dr Mampoi Jonas, senior lecturer in Paediatric Oncology, at the University of the Free State (UFS).

“Early diagnosis is crucial because early-stage cancer is more responsive to treatment and less likely to be fatal. Due to the rarity of childhood cancer, many children get misdiagnosed or diagnosed too late with advanced stage disease. The delayed detection and diagnosis diminish the chances of successful treatment.

“Cancer awareness educates families, communities, primary-care nurses and doctors about the early signs and symptoms of certain cancers. When people are aware of these, they are more likely to be on the lookout for them when children present with suspicious clinical symptoms and signs. This also gives parents the confidence to seek help early and even make people better able to support those with the disease once a diagnosis is made,” say the paediatric oncologists.

Recorded incidences on the rise

Though childhood cancer is rare, representing only 1.2% of all cancers worldwide, the recorded incidences are increasing. In the US cancer is the number one cause of death among children, while more than 100 000 children worldwide die because of cancer.

Prof Du Plessis says there are more than 12 major types of childhood cancers and multiple subtypes. The most common types are leukaemia, lymphoma (tumours that begin in the lymph glands), brain tumours, nephroblastoma (cancer of the kidneys) and soft tissue sarcomas. Most cancers in children are thought to develop as a result of mutations in genes that lead to uncontrolled cell growth and eventually cancer.

According to Dr Jonas, most cancers in children are thought to develop because of mutations in genes that lead to uncontrolled cell growth and eventually cancer. Although environmental pollutants have been implicated in some cancers, our experience has been that most paediatric cancers rather occur sporadically.

The reasons for the increase of reported incidence of cancer in children, could be to the increase in population numbers and better awareness of childhood cancers. Another reason might be that more children are being diagnosed who were previously misdiagnosed, explains Prof Du Plessis.

Treatments

Childhood cancers are treated with chemotherapy, surgery and radiation therapy under the care of a paediatric oncologist. Not much can be done about the genetic mutations, but parents can ensure that their children stay safe in the sun (slip, slop, slap campaign – slip on a shirt, slop on some suncream and slap on a hat), get their children vaccinated against HPV infection, help their children stay active and keep a healthy weight and talk to them about smoking.

Prof Du Plessis says the South African paediatric oncology community are currently busy with a few research studies regarding standardising treatment protocols for certain childhood cancers. This is to find out how our children are responding to these protocols and to see if there are different factors affecting the outcomes of South African children. These protocols are based on international treatment protocols with a few adjustments for local circumstances and resources.

They are involved with the Hodgkins lymphoma, neuroblastoma, retinoblastoma, germ cell tumour studies and contributed to a research study evaluating the nutritional status and interventions to improve the nutritional status of local patients. Registrars presented local (Bloemfontein) data at an international conference (SIOP Africa) on hepatoblastomas and osteosarcomas.

“For many childhood cancer may not be a priority or something they would like to think about. Unfortunately for many of my patient’s parents the truth is that the day before their children were diagnosed with cancer, they were also not a cancer parent. However, their lives changed for ever with these four words: ‘Your child has cancer’.

“Childhood cancer is more than chemo and no hair. It is rather about resilience, strength, hope, family, courage, cuddles, and bravery. Your life will be changed for ever if you have ever seen a child fight cancer. Their smiles will make your heart melt and make you realise the importance of the simple things in life,” declare Prof Du Plessis and Dr Jonas.

Early warning signs for parents

The Childhood Cancer Foundation South Africa (CHOC) has a campaign which emphasises the importance of recognising the early warning signs of childhood cancer. They use Siluan’s Early Warning Signs to raise awareness and promote early diagnosis which are:

• S – Seek medical help early for ongoing symptoms
• I – White spot in the eye, new squint, sudden blindness or bulging eyeball.
• L – Lump on the stomach, pelvis, head, arms, legs, testicle, or glands
• U – Unexplained fever present for over two weeks, weight loss, fatigue, pale appearance, easy bruising, and bleeding
• A – Aching bones, joints, back, and easy fractures

• N – Neurological signs, a change in walk, balance or speech, regression, continuous headaches with/without vomiting, and an enlarged head

While these symptoms can be subtle or easily attributed to other causes, it’s important to consult a doctor if they persist or worsen. If you notice any of these symptoms in a child or teen, seek professional medical help promptly. Early detection of cancer saves lives in both children and teens.

News Archive

Living proof of transformation
2012-07-20

 Prof. Pumla Gobodo-Madikizela (middle) facilitated a dialogue with Archbishop Emeritus Desmond Tutu and Prof. Mark Solms on the Transformation in the Solms-Delta Wine Estate.
Photo: Johan Roux

18 July 2012

“We have the capacity to make a success of South Africa. We have incredible people who refuse to leave the country and want to make a difference.” This is according to Archbishop Emeritus Desmond Tutu who was speaking at the University of the Free State (UFS) today.

Dr Tutu took part in a dialogue with Prof. Mark Solms, owner of the Solms-Delta wine estate in Franschhoek.Prof. Solms is also an A-rated scholar and the Head of the Department of Psychology at the University of Cape Town.The theme of the dialogue was “Living Reconciliation: Winds of Change in Franschhoek and Transformation at Solms-Delta Wine Estate”.

Prof. Solms led an initiative to transform the lives of farm workers on the estate through the Wijn-de Caab Trust. This initiative was extended to empower the wider community of farm dwellers when Prof. Solms co-founded the Delta Trust and the Franschhoek Valley Transformation Charter.

The dialogue was the second in the Dialogue between Science and Society series and was facilitated by Prof. Pumla Gobodo-Madikizela, Senior research professor on Trauma, Forgiveness and Reconciliation at the UFS. The Dialogue series aims to inspire new ways of thinking about responsible citizenship. It also highlights the unique and important ways of engaging with the critical issues of social equality, social justice, social transformation and reconciliation in South Africa.This morning Dr Tutu said the work done in the Franschhoek community is proof that people cannot prosper alone if others are also not prospering. “We belong together. Why did it take us so long to realise it? South Africans have the capacity to make South Africa a better place. It is unacceptable that people go hungry and go to school under trees. It is unacceptable that they still have no books in the third term, and that the pass rate is 30%.

“Is this why we struggled, why people died? We want to go to our graves smiling… we will not be allowed peace and stability if we do not attend to the problems.”

Prof. Solms said the miracle of the political transformation did not trickle down to the people. A lot has been done, but much more needs to be done. “It can only be done by us. It is not the government’s responsibility. The way we live as a result of apartheid is that we are a deeply divided society. We must recognise this and do something to change it.”

He encouraged people to think “small”. An individual cannot change the whole country, but the changes in his community are there to see.

Dr Tutu also congratulated the UFS on becoming a truly South African university, recognising the transformation of the past few years.

The dialogue was presented at the Global Leadership Summit that 250 students and academic leaders from 21 international universities are participating in. The summit runs until Friday 20 July 2012.
 

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